Negotiating community long-term care: The experience of spousal caregivers caring for their partners with dementia.


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About the Edition

The study employed a survey design with a convenience sample of 85 spousal caregivers who lived with their partners and who were using some form of community long-term care services. The face-to-face administration of the study questionnaires allowed caregivers to offer further remarks regarding their experiences with both the service system and caregiving in general. These comments were valuable in extending interpretations of the quantitative data.The objectives of this study are twofold: (a) to examine the relationship between the long-term community care system and spousal caregivers" mental health and (b) to explore the associations between different types of community long-term care services and caregivers" mental health. Informed by an ecological systems framework, this dissertation aims to depict the relationship between, a complex, market-oriented, resource-limited, long-term community care system and caregiving spouses" mental health.The results of this study highlight that adult day programs offer spousal caregivers a unique form of respite. Of three different types of respite services including; day program services, in-home community support workers" services, and institutional respite services, only the frequency of day program use significantly correlated with caregiver burden. Multiple regression analysis showed that caregivers whose spouse used more days of a day program experienced less burden. Comments made by caregivers in this study reinforced the important respite afforded by adult day programs.The results of this study further demonstrate that new or substitute in-home community support workers, who are not informed about the needs of caregivers and persons with dementia, negatively contribute to spousal caregivers" perceptions of services. Specifically, a multiple regression analysis demonstrated that, the less informed in-home community support workers were the more spousal caregivers experienced service discontinuity.Finally, the findings from this research suggest that spousal caregivers do not currently have access to ongoing one-on-one professional support for case coordination, and for information and guidance. Consequently, these caregivers are isolated in their provision of some of the most complex and emotionally challenging types of care. This study offers practice and policy implications that look to close the gap between spousal caregivers" needs and the long-term community care system.

The Physical Object
Pagination194 leaves.
Number of Pages194
ID Numbers
Open LibraryOL21549243M
ISBN 109780494220467

Negotiating community long-term care: The experience of spousal caregivers caring for their partners with dementia by Tamara Sussman

In 2006, Tamara Sussman published a groundbreaking book titled "Negotiating community long-term care: The experience of spousal caregivers caring for their partners with dementia." This book sheds light on the challenges faced by spousal caregivers who provide care for their partners with dementia in the community setting. It offers valuable insights into the experiences and coping strategies of these caregivers.

Understanding the importance of community long-term care

Community long-term care plays a crucial role in supporting individuals with dementia and their caregivers. It enables individuals with dementia to receive the care and support they need while continuing to live in their own homes. This book dives deep into the experiences of spousal caregivers who navigate the complexities of community long-term care for their partners.

The unique challenges faced by spousal caregivers

Spousal caregivers often find themselves in a unique caregiving role, providing both emotional and practical support to their partners with dementia. They face challenges such as managing behavioral symptoms, coordinating medical appointments, and addressing the impact of dementia on their own mental health and wellbeing.

Through Sussman's research, readers gain a profound understanding of the personal struggles and triumphs of spousal caregivers. The book delves into their experiences, examining how they negotiate the healthcare system, seek support, and adapt to the evolving needs of their partners.

Insights into coping strategies for spousal caregivers

Sussman's book provides valuable insights into the coping strategies employed by spousal caregivers. It explores the different approaches these caregivers adopt to manage their own stress and maintain their resilience. Readers will find practical advice and recommendations, ensuring they feel supported in their own caregiving journeys.

Why this book is a must-read for caregivers

"Negotiating community long-term care: The experience of spousal caregivers caring for their partners with dementia" is a must-read for caregivers, healthcare professionals, and anyone interested in understanding the challenges faced by spousal caregivers. It offers a comprehensive exploration of the caregiving experience while highlighting the importance of community long-term care.

Now is the time to download the book and delve into its valuable content. Gain insights, learn coping strategies, and empower yourself as a caregiver. Don't wait, download the PDF, EPUB, MOBI, or TXT version of the book for free and start reading it online or offline.

Caring for your loved one with dementia

If you are caring for a loved one with dementia, this book will provide you with invaluable guidance and support. Learn from the experiences of others and discover effective ways to navigate community long-term care. Download the book now and begin your journey to becoming a more informed and empowered caregiver.

Supporting spousal caregivers

For healthcare professionals, this book offers a unique perspective into the challenges faced by spousal caregivers. It equips you with the knowledge and insights needed to provide more effective support and care to this vulnerable population. Download the book today and enhance your understanding of spousal caregiver experiences.


"Negotiating community long-term care: The experience of spousal caregivers caring for their partners with dementia" is a seminal piece of work that sheds light on the experiences of spousal caregivers. Its insights, coping strategies, and recommendations are invaluable to caregivers and healthcare professionals alike. Download the book now and embark on a journey of understanding and empowerment.